I have been working with family members of MND sufferers and also the sufferers, as an experienced Counsellor with LINK Barnardos.
With MND your movements are affected. Message from the brain gradually become weaker and eventually stop working. This means every muscle in your body become affected except eye movement. My knowledge and experience support family members through this incredible difficult time. This is no cure for MND and life expectancy from diagnosis is on average one to five years.
My experience includes working with children as young as 8 years of age whose parent is dying of MND. Many of the sufferers are in the 50-60 age group. It is important to allow my clients to talk freely, to make memories and also not to neglect their own lives.